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You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- Beverley Ann Johnson replied to Beverley Ann Johnson's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Gluten challenge
I have been gluten free and it gets better, I know it is the gluten but the doctor wanted a formal diagnosis, I just can't afford to be sick every time I eat, it is awful and I know it damages my body. If it means not getting a diagnosis then so be it, my health comes first. Thanks for the comments, this site is really helpful, great support. -
- Eldene replied to Eldene's topic in Sports and Fitness3
Sore muscles
Not really a solution. There is too much cross contamination in South Africa. I doctered my sore shins with Arnica Cooling gel and the inflamation is gone, thank you. -
- Eldene replied to Eldene's topic in Sports and Fitness3
Sore muscles
Not good news. In South Africa cross-contamination is too common. I am researching other options. -
- trents replied to Zonisamide's topic in Related Issues & Disorders1
Seizure medication better?
Welcome to the forum community, @Zonisamide! Any answer to your question would necessarily be conjecture at this point. We do know that neurological disorders are among the medical problems associated with celiac disease. But to say in any particular case that celiac disease is necessarily the cause of a person's neurological problems would be impossible... -
- Zonisamide posted a topic in Related Issues & Disorders1
Seizure medication better?
Greetings, my name is Mike. I just found this group. Being diagnosed with seizures already and just now discovering celiac disease, but having all the symptoms since I was diagnosed with my first seizure. Would seizure medication still be necessary if gluten free diet is followed? This may be a difficult question? Thanks.
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