This Spring, please fund a brighter future for EB children like Albi, by providing specialist items that will enhance their quality of life and provide comfort. Read more
Participate in five team flurries offering varied and challenging shooting, followed by a champagne reception and two course lunch. Read more
With your support, we will continue investing in drug repurposing clinical trials and providing an enhanced programme of community care and support for people living with EB. Read more
DEBRA is a national charity and patient support organisation for people living with the rare, extremely painful, genetic skin blistering condition, Epidermolysis Bullosa (EB) also known as ‘Butterfly Skin’. EB causes the skin to become very fragile and tear or blister at the slightest touch. With your help we can find treatments and cure(s) for EB.
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If you or a family member live with EB, are a carer or someone who works with people affected by EB, then you can become a DEBRA member. Find out how.
DEBRA funds research to find effective treatments that will lessen the day-to-day impact of EB, and, ultimately, to find cures to eradicate EB.
Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.
Join #TeamDEBRA on an incredible virtual journey across the globe and BE the difference for EB! 🌍 Read more
Join #TeamDEBRA for the Great North Swim. Take on this one-mile swim which is suitable for all abilities at Lake Windermere in the beautiful Lake District. Read more
An update from our board of trustees, including key activities undertaken in the first quarter of 2024, and the progress we are making to BE the difference for EB. Read more
We are delighted to open a bright and modern charity shop in the heart of Lightwater village. Read more
We are delighted to announce our first four EB voices ambassadors. Read more